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Events
We host events for patients, families, and the research community. Additional information is available through our newsletters and social media.
Scientific Convenings
Thu, Apr 24ZoomTitle: SVIP (Small VCP Interacting Protein) as a Therapeutic Target for VCP-Related Diseases Speaker: Alyssa Johnson, PhD, Associate Professor, Louisiana State University
Patient and Family Events
Apr 08, 2025, 8:00 PM – 9:00 PM EDT
VARIOUS DATES
Patient Events
Fundraising and Awareness
Apr 05, 2025, 5:00 PM – 8:30 PMDakota Lodge, 14422 W Ken Caryl Ave, Littleton, CO 80127, USA
May 04, 2025, 12:00 AM – May 10, 2025, 11:50 PMVirtual Move-a-thon
Aug 09, 2025, 5:30 PM – 10:00 PM EDTFall Line Station, 567 Plum St, Macon, GA 31201, USA
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