top of page
Events
We host events for patients, families, and the research community. Additional information is available through our newsletters and social media.
Scientific Convenings
Thu, Apr 24ZoomTitle: SVIP (Small VCP Interacting Protein) as a Therapeutic Target for VCP-Related Diseases Speaker: Alyssa Johnson, PhD, Associate Professor, Louisiana State University
Patient and Family Events
Thriving in a VCP Family: Life, Roles, and PlanningApr 22, 2025, 8:00 PM – 9:00 PM
Cure VCP Disease Biobank RoadshowVARIOUS DATES
Patient Events
Fundraising and Awareness
2025 I CAN MOVEmentMay 04, 2025, 12:00 AM – May 10, 2025, 11:50 PMVirtual Move-a-thon
Energy One presents: 2025 Cure VCP Disease CelebrationAug 09, 2025, 5:30 PM – 10:00 PM EDTFall Line Station, 567 Plum St, Macon, GA 31201, USA
bottom of page