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Our Impact
Our work, fueled by our desire to find a cure, has the potential to transform the impossible into possible - for patients, their families, and our communities.
Our Outcomes
Scientific discoveries don’t happen overnight or without hard work, but our determination to find answers for patients with VCP disease motivates us to develop breakthrough partnerships and patient care techniques. Our key projects are prioritized to facilitate collaborations that enable progress toward a cure.
$1.5M
Funds
Raised
118
Global Patient
Registry
2
International Scientific
Conferences
83%
Funds Allocated to Research & Patient Support
8,500
Views of VCP
Standard of Care
3
Patient
Conferences
52
Patient Research
Visits Funded
30
Labs in
Research Network
7
Scientific Research
Projects Funded
Patient Stories
Our patients are at the center of everything we do. Their determination and selfless drive to make life better for their families is inspiring as they battle this devastating disease.
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