Can't believe that we never shared this story on our blog. Allison Peck, co-founder of Cure VCP Disease, shared her story with Global Genes in November of 2019 She talks about turning tragedy into passion and how "Together We Can Make A Difference."
This month we have launched our natural history study and standards of care project. These projects are the embodiment of the strength of the VCP community and how positive change can happen when we pull together for a common goal