In 2013, 190 individuals from 27 families with IBMPFD were studied by leading researches across the globe. Why? You may ask. Looking at our family histories may help us build a better future. The below study "represents the largest dataset of patients with VCP disease and expands our understanding of natural history and provides genotype-phenotype correlations in this unique disease." Read more to find out inforamtion like average age of onset, demographics, average life span . . . .
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3618576/
