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News & Updates

Announcing: A New Hope | Well-Being in Rare
A New Hope | Well Being in Rare will be offering access to genetic counseling and testing, educational programs, and mental health support.


Welcome Dr. Jordi DÃaz-Manera to the Cure VCP Disease Medical Advisory Board
Welcome our newest member to the Medical Advisory Board, Dr. Jordi Diaz-Manera


AFTD 2024 Educational Conference Recap
This is a recap of the 2024 AFTD Educational Conference hosted in Houston, Texas.


Introducing Dr. Zollie Yavarow: Our New Director of Scientific Engagement and Collaborations
Announcing Dr. Zollie Yavarow as Cure VCP Disease's New Director of Scientific Engagement and Collaborations


BBQ, Brews & Bingo - 2024 Cure VCP Disease Celebration
On Saturday, August 10th, we hosted our annual Cure VCP Disease Celebration at Fall Line Station in Macon, GA.


Everything you need to know about the 2025 Cure VCP Disease Celebration
A full guide on what to expect at the 2024 Cure VCP Disease Celebration

Dr. Eileen Lynch Wins 2024 Young Investigator Award
We are pleased to announce that Dr. Eileen Lynch, PhD, is our 2024 Young Investigator Award (YIA) winner for her work on "The role of VCP...


PRESS RELEASE: Cure VCP Disease Announces Collaboration With NCATS For The Creation of 3D Muscle Tissue Models For VCP Disease
Innovative Phenotypic Screening Approach to Identify Potential Therapeutic Drugs for Rare Neurological and Muscular Disorders (FEB. 9,...


PRESS RELEASE: Cure VCP Disease, Inc. Awarded $25,000 Muscular Dystrophy Association Advocacy Collaboration Grant
Grant Empowers Collaborative Project to Make Clinical Trials More Accessible (FEB. 1, 2024 – WARNER ROBINS, GA) – Cure VCP Disease, Inc.,...
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